Monday, April 27, 2009

New project!

Since I have a rare pattern called Mosaic Down Syndrome, I did some homework and found the Int'l Mosaic Down Syndrome Association. They are having a conference in July in Cincinnati, and my husband and I are talking about what it is like being an adult with MDS. It is very cool having an org that is specific to my condition! Not that MDS defines any major part of me; but it does play a part in my personality and traits.

I am also about to embark on an interesting direction -- doing a video with another adult with MDS, and it will be a collaborative effort. I will post to let everyone know when it is ready for viewing, and then I will post it!

Thursday, February 19, 2009

Down Syndrome/Mosaic Down Syndrome discussion board

Hey, everybody! You wanna get to know more people like us? This is the spot! Tell me your story, and let's hook up!