Tuesday, February 16, 2010

This upsets me too...

Even though I do not like Sarah Palin's political bent, I must say that her ties to Down Syndrome are along my lines of belief. I did not see that episode of "Family Guy", but if this was the message, I am glad Sarah & Bristol spoke up. It just seems to fly in the face of the Golden Rule, to which I love to refer. If you wouldn't like to be made fun of (fill in a weakness). you shouldn't make fun of others' weakness. Period.

Monday, February 15, 2010

President's Day acknowledgement

It is Monday; President's Day 2010! What are we celebrating? The birthday of two previous presidents of the USA; Lincoln & Washington. Two great leaders, two great men. Each came from differing backgrounds -- one from the sticks, and one from a well-off plantation owner. One became a military leader, one became a prestigious laywer. One had an almost cult following, the other eith loved or despised, not anywhere in the middle. Two very distinct individuals. And yet, they have one thing in common -- the Presidency of the states of North America as they knew it in those days.

Let us all tip our hats (if we are wearing any) to these good men; they proposed one thing we should ALL stand under; that all men are created equal. Nowhere does it say, "Only men who are blue-eyed, or write with only their right hand, and have all the aspects and traits of someone who thinks and acts just like everybody else." Nowhere does it say, "Only those who can see, hear, not have any seizures, etc."

God Bless America!

Tuesday, February 2, 2010

senior moments

I do worry about developing Alzheimer's Disease...I have those "senior moments" often enough to concern me. When I am at home, to keep track of errands and chores, I use Microsoft Outlook. When I am out, I use my cell phone to leave myself voice messages/recordings of those sudden remembrances like go to the cleaners on Tuesday, right after I have dropped something off on Thursday; or call a gutter cleaning guy b/c the gutters are clogged.

Maybe I need to be like Dora the Explorer...

Where am I going? To the bathroom! Why am I going? Clap, clap clap... to supply TP! Why am I going? Clap, clap, clap...to supply TP! Why am I going? Clap, clap, clap...to supply TP!

What do you think?!

Wednesday, January 27, 2010

Rising above

Living with mT21, or Mosaic Down Syndrome, is not always easy. I call it one of many "invisible" disabilities, or even a talent. Look at it this way -- if you are a believer in G-d and/or Jesus, you probably believe that whatsoever G-d giveth, He also take away. If you do not believe, you may believe in yin/yang, god/evil, or some other sense of balance. When something is changed, something else is tweaked for balance.

SO, who is to say that mT21/T21 is the negative side of the coin? What if, for the sake of argument, that having T21/mT21 is a good thing, and the "norm" is the flip side? I would love your feedback...what pluses do you think you have since T21/mT21 came into your life?

Monday, April 27, 2009

New project!

Since I have a rare pattern called Mosaic Down Syndrome, I did some homework and found the Int'l Mosaic Down Syndrome Association. They are having a conference in July in Cincinnati, and my husband and I are talking about what it is like being an adult with MDS. It is very cool having an org that is specific to my condition! Not that MDS defines any major part of me; but it does play a part in my personality and traits.

I am also about to embark on an interesting direction -- doing a video with another adult with MDS, and it will be a collaborative effort. I will post to let everyone know when it is ready for viewing, and then I will post it!

Thursday, February 19, 2009

Down Syndrome/Mosaic Down Syndrome discussion board

Hey, everybody! You wanna get to know more people like us? This is the spot! Tell me your story, and let's hook up!